Tuesday, June 30, 2009

Echo-Echo-Echo


Are you wondering about my title and picture this time? Well, it has to do with my last Dr appointment I had Friday June 26th. First let me say that this was the first time my Dr appointment took two hours! I really wish they would have told me they were running behind. I could have gone and done some of my running around and come back. He did say I was the first healthiest patient he had had all day and this was at 3:30. Not a good day for him I don't think.

My reports were good. My white count was actually in the low normal range. Hallelujah! It was 4.9 and the lowest normal level is 4.8. My hemoglobin was still below normal at 11 but that isn't bad either.It is all slowly coming back up. He was not planning on me having the FISH or PCR done for another month but when I had gone into the lab they had it on their orders to draw for both of those. I am to call them later yet this week and find out what the results of these were cause Dr. Sangha said that if these were looking good that he would probably lower my medication from 800 milligrams to 600 or even 400. This would be great! Not that I have really struggled with the medication but it would help releave some of the muscle cramps I have had mostly in my hands now. Some times when doing the littlest of things my fingers and hand will cramp up and get tight. It doesn't really hurt but feel real strange and you don't have much control over it. Also the lower dosage would help with it settling better in my stomach I would think. I will report here on the blog later this week in regards to that.

Dr Sangha also talked about getting be scheduled for and echo cardiogram. Hence forth the picture. This is the part I need you praying about. Anything pertaining to my heart just totally freaks me out! It is one of my major anxiety issues. I have always worried about having some sort of heart failure. I haven't actually worried too much about it for over a year now.Since my panic attachs years ago I have had EKGs and even a stress test and everything has been normal and just fine. But my mind has a way of telling me differntly. For about a week now, but even more so since Fridays appointment, I have been feeling like I am more stressed. I thought it just had to do with the business that has been going on this past monthbut to tell you the truth I dont know exactly why I am feeling this way. I just feel my neck and shoulders are much more tight, I have definetly been clenching down on my teeth much more again and sleep has been a little disturbed. My mind keeps thinking bad thoughts. Here things have been going so well that for a short while now, even before the mention of echo cardiogram was mentioned, I have been wondering what is going to happen. My mind just gets going and thinking things like "things have been going to well, you know something is going to change. It cant all be this easy. You know you are doomed for worse things." I lay in bed and can feel how my breaths are short and how tense I am and know my mind is trying to take over.

My mind tries to make big of even the littlest of discomforts my body has. Like last night my body was a little sore from moving furniture in the basement yesterday and it tries to tell me that this is signs of heart problems. I try to pray my prayer I say all the time my minds starts going, "Do not be anxious about anything , but in everything, by prayer and petition, with thanksgiving, present your request to God." Philippians 4:6 This usually brings me comfort and eventually sleep but I more then often have to repeat it more then once. I just noticed something about this verse, a part I had been leaving out when I prayed it. The part that says, with thanksgiving. Am I thanking God for these feelings? No, more like thanking him for being there and being able to take away the feelings if I am willing to present them to him. Knowing that God is with me. I so could not get through those times and many others if I didn't know God was there. I don't know yet when my appointment will be. The person scheduling it was going to make it for the same day I went back for my blood draw in a month on July 27th. I will check on that too when I call about my blood results.

Something else my body has had to adapt to with the whole medication and leukemia stuff is my monthly period. For most of my life I have been blessed with a very slow, inactive period. But since about March my flow has been way, way more then I am use to. I am back to worrying about leaking and having to change my pad way more often. (sorry men about this but it is a part of life and what I am going through.) This has been a source of stress as well.

I will be adding a few books that I have read that have been helpful to me that you may find of interest in the book list here on this blog. The one that was really helpful with my anxiety and depression was "Calm My Anxious Heart" by Linda Dillow. This book has a lot of really good stuff in it.

So that is where I am at now with my CML and so thought I would share a little bit about what my family is and has been up too. The big news is that Craig got ordained June 7th at the Annual United Methodist Conference. A lot of family came to Ames to take part in this special occasion and just this last Sunday, June 28 we had an open house for him here out Geneseo U.M.C. We had the pleasure of seeing people we haven't seen for many years like Bob and Jean Cousens. And also meeting Craigs grandma Ferguson's neice and her husband,Merlene and Lyle Neher whom actually dont live too far from us. I am very proud of my husband and all the hard work he has had done. He is my strength and comforter.

We had the pleasure this month to camp for four days with my side of the family in Yankton S.D. It is always so much fun to just sit and relax and be able to visit and be with my folk and sibblings and their families. And of course the kids always enjoy being able to get together for more then just a short few hours and get some good play time in. They are all growing up so fast. The weather was great minus a pretty good storm that went through early one morning and I was very greatful that we weren't tenting it this year but had rented a camper.

Blessing to everyone and remember Prayer Changes Things!

1 comment:

  1. I love the picture of your family. I continue to hold you in my prayers.

    Rev. Anne

    ReplyDelete